While we are very grateful that Ruby is doing so well. We are very grateful that we had the means and ability to go to CHOP and have her. We have had the most horrible luck since we got home when comes to our house and cars. Since we got home we've needed a new roof and a repair of rotted wood on our workshop. Then appliances started breaking. So far the oven, microwave, dishwasher, and dryer. Some were under warranty and the rest we've had to replace or fix. Then this morning the check engine light on one of our cars came on. It's going into the shop this week to be fixed. Not exactly the best luck around here as far house stuff goes.
Now for a feeding update. I pulled the tube Friday before lunch. On Saturday, Sunday, and Monday Ruby took 16-18 ounces of formula and ate well, too. Then today as of 6pm she had only taken 6 ounces of formula. Without tube she has to take her reflux meds by mouth. Sometimes she swallows them no problem. Other times she will spit it right back out. She wouldn't nap today and I know her reflux was hurting her. The Nexium doesn't keep her from refluxing, it just neutralizes the acid so it doesn't hurt. She would cry and cry every time I laid her down, even if she was already asleep. So, this evening I put the NG tube back in. While we feel she did really well, we knew we would have to put it back in. We'll give her a couple days to recover and then try again.
Lost is on and I haven't downloaded the most recent pictures. I'll post some pictures tomorrow. For now it's time sit back and relax.
