Ruby Hope McKee Starling

It is FINALLY fall here.  We've had highs in the 70's all weekend.  Friday was even in the 60's!  We've done our best to take advantage of the weather. 

Before I go into the weekend I'd like to announce that we have been off the Diuril and Potassium Chloride since Monday and Ruby is doing great.  This is so nice.  It means respiratory wise her lungs can handle it.  It also means we can play around with her feeding schedule and allow her to get hungry.  Tomorrow is going to be a big day in that respect.  Both her peadiiatrician and GI docotor have suggested we let her get REALLY hungry.  So tomorrow we are only going to feed her what she will eat by mouth and see how it goes.  I reserve the right to cancel this little experiment if things get out of hand.  It will be nice to see how much she eats when she is hungry.

Now for the busy weekend.

Friday morning since it was so nice I decided to take Ruby for a walk. We headed over to our neighborhood park with hopes of swinging on the swings (I had clorox wipes to wipe them down.) The swinging got put on hold when Ruby fell asleep during the 5 minute walk to the park.  I did however take pictures our little adventure.

After the nap and walk we had some play time.

Friday was a rough day reflux wise.  After Friday we decided to switch Ruby from Prevacid to Nexium.  Prevacid came in a pill that we would dissolve in water then give it through the NG tube.  The actual medicine part of the pill are little orange balls. We were having trouble with the these balls clogging up her tube.  The Nexium is a powder and completely dissolves in water.  It's much to easier to give through her NG tube. Ruby's reflux is getting better, but we still have good and bad days.  We're all getting used to it.  Chris and I are both getting really good at catching all the vomit in a burp cloth.  We will go days without any problems and we'll have a bad one for no reason.  We've been told this normal.

Ruby required 3-4 wardrobe changes on Friday, due to reflex. Which is kinda nice since she has so many cute clothes.  I did strip her down to her diaper for lunch.  There is only a short time in ones life that it's socially acceptable to eat lunch in your underwear while pooping.  We've also started giving Ruby teething bisuits and she really likes to chew on them.  She doesn't have any teeth yet, but she starting to show signs of teething.

After lunch we had another nap.  This time in her Dad's favorite onesie.

After her mid-afternoon bottle we needed yet another outfit.  Are you keeping track?  This is outfit number 3 for Friday.

Friday night Chris and I got to go to movie.  Our awesome babysitter Becky watched Ruby so Chris and I could get out for a bit.  I forgot to get a picture of Ruby and Becky.

Saturday Ruby had a nice a day with Chris.  Saturday mornings I run my long run of the week and am gone most of the morning.  We did make some time for playing ball in the afternoon.  Ruby is going to be the next Mia Ham.

Then today we took Ruby down to The Lady Bird Lake Hike and Bike Trail.  I did my recovery run while Chris and Ruby took a walk.

We followed that up with lunch on Whole Food's patio.  Ruby seemed really happy to be out and about.  She loves to people watch.  Luckily we have a mild enough winter that we should be able to take to outside things all winter.  I can't imagine how hard the cold and flu season would be if we couldn't even go outside.

We hope everyone had a nice weekend. 

Little Jaime Trost, one of Ruby's CDH friend's, is having surgery tomorrow.  He re-herniated.  Please keep him in your thoughts tomorrow.